Time to re-introduce myself....
I'm 34, married, had a miscarriage last October (the pregnancy wasn't planned
either, but we were happy about it until...) so I went off all meds hoping to
get preggers again, we have a dog, cat & bird, and just got a new puppy who's
determined to drive me crazy!!!
I had my gallbladder out 12/2000 and was never right since. By April 2001, I
had my first ERCP with a biliary sphincerterotomy, and was left with
gastroparesis (I'm happy to say that the gp is
under control via alternative/natural means). On & off since that ERCP, I wound
up with intermittent pain, and once in awhile, I'd vomit bile and have the dark
brown urine, and clay colored bowel movements but I didn't want to risk an ERCP
again.
Well, I wound up in the hospital New Year's Weekend for 4 days with liver
problems (elevated counts, 104 fever, vomiting bile, dark brown urine, and clay
colored bowel movements) - so in Feb 04 they did an ERCP with a biliary
sphincterotomy again to try to correct the problem AGAIN.
In Mar 04 I wound up in the hospital again (just the ER this time) - then it
looked like not only was the liver problem still not corrected, but there was
now pancreas involvement too.
In Apr 04, I had the ERCP again, biliary sphinceterotomy, but the doc said since
the biliary pressures where so high he didn't want
to risk pancreatitis by cutting the pancreatic sphincter. So I was left in
constant pain afterwards.
I decided to find another dr on my own- and did- one who specialized in SOD
(sphincter of oddi dysfunction), bile/pancreatic duct disorders, etc. I emailed
him on a Mon nite, he called me Tues nite, his secretary called me Wed am to set
up an appt, Thurs I scrambled to get my original records together, and Fri we
met. He suggested to try Zelnorm - I'd already been on Bentyl, Levsin, Levbid,
etc, and we sched the ERCP for 6/2/04. He planned on cutting the biliary
spincter as far as possible, cutting the pancreatic sphincter as far as
possible, and possibly placing stents in both sphincters to be removed in 3 wks.
Well, this time I wasn't lucky - I developed pancreatitis. I got home the first
time on 6/7 (just 5 days later) got home today, and feel like I should have
stayed in the hospital longer. I had a panic attack that lasted about 20
minutes they gave me Ativan. From that point on, they kept me on Ativan the
whole time I was there. Now that I'm home and off the dilaudid, the pain is
unbearable - he gave me 14 pills of Percocet 10.
I can't say that's helping at all
By the 9th, I showed up at the dr's door and waited in his in waiting room till
he saw me - they took blood and sure enough, pancreatitis -the dreaded "p" word.
I was immediately admitted (y'know after 5or 6 hrs of waiting even more) than
put on stuff for that. I was having dizzy spells something awful - someone said
check my blood sugar. Well what do you know - my sugar was only 14!!! Only the
Goddesss knows how I was still consciencious at that point. They started
infusing me with Dextrose & the usual Sodium choloride - although now they had
to give me insulin to countereffect too much sugar! REmember this is a top
notch doc in Phila PA whom I left my previous dr because I thought I'd be safe!
He took out the stent on the 11 because he was afraid it was making things worse
(as if that was posssible).
By the 18th, he released me from care and he gave me Morphine Contin & Morphin
IR along with Amoxicillin (for what infection I have no idea, but at least I
have some on hand next time I'm sick!) and mega doses of Potasssium. What's the
one med they never ever ever EVER give you with SOD/pancreatitis: morphine!
A**hole.
I nearly smashed my car, I physically fought with my husband, was abusive to
anyone who was within earshot, I cannot begin to tell you the pain I caused so
many people. Yet they never turned their backs or wavered in their support -
for that I will forever be greatful.
But by the 20th I was so much worse that my husband could bnot fight me down esp
with those pills in my body (he's like 5'10" &170, and I"m like 5'3" &125), so
he made a decision, he was going to get me back to my original dr and have him
take a look. I physically fought him so hard I didn't want to go, I told him I
didn't love him if he could do this to me - (from my messed up point of view,
how/why could he want to get rid of me after 10 yrs of marriage?).
So my orig dr took me back, admitted me (with me cussing the whole time) and
took me off all meds except the potasssium. Thru alittle investigating, before
he even had my whole record yet, he asked if i knew what delayed gastric
emptying syndrome was - i said sure I have it - it's called gp (gastroparesis).
He said Hallelujah, we have our diagnosis. He put me on a tricylcic
antidepressant I was on before the pregnancy (and told me NEVER go off it again!
I"m only on a child's dose anyway at 25mg (with the normal adult dose ranging
from 75 to 150mg), the risk to the fetus is minimal with the drug, the risk to
the fetus could be life threatening without it.) Also, I'm on reglan now, which
I had avoided in the past by taking liver/digestive enzymes. He said that's fine
if I want to swap out the two, but if the one isn't working, start up with the
other one!
I can't believe how close I came to dying. If it wasn't for my husband, I know
I would not be here today.
I have to thank him, his dad (who can't drive but called me repeatedly to say
hi), my grandparents who also don't drive much yet called many times, and my
neighbor Carol (and her puppy Chloe) who always checked in on me no matter what
happened (even when her own mother died this past friday - the viewing/funeral
is Wednesday), and all of my co-workers present & former who made sure I heard a
friendly voice every day and that I knew for sure that I was loved.
Thank you, all of you, for being there when I neeed you - showing up at my
hospital room, showing up at my house, hounding me with phone calls, and never
giving up on me, even when I had given up on my self. I love you all so much,
you will forever be in my heart.
Gentle/Peaceful Hugs
Speedy Recovery to you all
All my love,
Cathie